I had life-saving abdominal surgery on August 25, 2017. My primary surgeon, Dr. Greene, with the help of 3 other surgeons, removed a 32lb tumor and 8lbs of fluid. The tumor turned out to be a rare, highly aggressive cancer called uterine myxoid leiomyosarcoma. It is high grade and is stage 2b. To the best of everyone’s knowledge and expertise, it has *not* metastasized. This cancer usually spreads to the lungs first, but mine are still clear!
With surgery came a subtotal, or partial, hysterectomy (everything but the cervix). I was too malnutritioned and bleeding too heavily for Greene to risk full removal of the reproductive organs or of the tumor (he got 95% of it). I hope to have the rest removed after my chemo is complete and my immunity is back up. This will help lower the risk of recurrence, which is purportedly high with this cancer.
I started chemo on October 10, 2017, in Bristol, VA. Each cycle is 21 days. I took 3 different drugs (2 chemo drugs and 1 shot to help boost my WBC).
Unfortunately that chemo didn’t work. I am on a new protocol as of January 18, 2018. You can learn about my experience on my timeline.