For Patients

Survivor Sites:

• Uterine Leiomyosarcoma – Integrative & Natural Treatments
  •  Heal with Jeannie (YouTube Channel) – same person as above site

Survivor Stories: (Not individual’s sites)

• Linda
• Lynn

Local (to me) Resources:

• None that I know about as of February 2018.

Non-Local (to me) Resources: If they have an asterisk (*) I have personally used them. If not, they are resources I, or my wife, thought looked promising if needed to travel for additional programs to help me. And we thought others may appreciate the links as well.

• Sarcoma Survivorship Clinic – Ann Arbor, MI

Leiomyosarcoma Resources:

• Leiomyosarcoma Direct Research Foundation
  • Boot Camp – New Patients
  • LMSDR Facebook Group
• Sarcoma Information for Leiomyosarcoma Families

Uterine Sarcoma Resources:

• Q & A on Uterine Sarcoma

General Sarcoma Resources:

• Sarcoma Centers & Specialists (US, UK, Australia, Canada, China, France, Germany, Italy, Japan, Poland, Spain, Sweden)
• Sarcoma Foundation of America
• The Importance of Second Opinions for Sarcoma

Immunotherapy Info:

• Immunotherapy Offers New Strategy for Treating Sarcoma (MSKCC)
• A Phase II Study of T-VEC plus Pembrolizumab Immunotherapy in Patients with Sarcoma
• A Phase II Study of Immunotherapy with Nivolumab, with or without Ipilimumab, in Patients with Metastatic or Inoperable Sarcoma