Survivor Sites:
- Uterine Leiomyosarcoma – Integrative & Natural Treatments (Jeannie -diagnosed in 2008, still replying to comments on her blog in 2024!)
Survivor Stories: (Not individual’s sites)
Local (to me – SWVA) Resources:
- None that I know about as of February 2018.
- Still none that Amanda knows of as March 2024.
Non-Local (to me) Resources: If they have an asterisk (*) I have personally used them. If not, they are resources I, or my wife, thought looked promising if needed to travel for additional programs to help me. And we thought others may appreciate the links as well.
- Bone Cancer (Sarcoma) Survivorship – University of Kansas Cancer Center
- Massey’s Survivorship Program – Massey Cancer Center (Richmond, VA – VCU)
- Pediatric Sarcoma Clinic – Mayo Clinic
- Sarcoma Survivorship Clinic – Ann Arbor, MI (University of Michigan)
- Sarcoma Surveillance Clinic – Seattle, WA (Fred Hutch Cancer Center)
Leiomyosarcoma Resources:
Uterine Sarcoma Resources:
General Sarcoma Resources:
- Sarcoma Centers & Specialists (US, UK, Australia, Canada, China, France, Germany, Italy, Japan, Poland, Spain, Sweden)
- Sarcoma Foundation of America
- The Importance of Second Opinions for Sarcoma
- Sarcoma Alliance Conference
- Sarcoma Alliance
- Using a virus to teach the immune system to kill cancer (sarcoma)
Immunotherapy Info:
General Cancer Resources:
- Foundation Medicine -“Every cancer is unique. That’s why we are committed to providing specific genomic insights into your cancer to help your doctor guide a personalized care plan.” (A sample of Teresa’s tumor was sent to FM so that they could tell us the best possible treatment options. They also had financial aid available.)